Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

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The VBF Europe considers your privacy with the utmost importance. Please know that, due to the nature of the Internet, communications with the VBF Europe cannot be made totally private. If you wish to write to us, use our online Discussion Forum, or communicate by email, the VBF Europe is not responsible for your privacy. In our Discussion Forum, information that you put in may be public. The VBF Europe may contact you, by email or regular postal mail, but will not sell, rent, lease, or otherwise make your information public.


Disclaimer

Always seek the advice of a physician or other medical professional for diagnosis and treatment. The VBF Europe and/or Vascular Birthmark Foundation are not responsible for the content or accuracy of any information, advice or links on the site. In case of links that go outside of this site, the VBF Europe or the Vascular Birthmarks Foundation is not responsible for the content or accuracy of any information on other site.


Privacy Policy

Information Collection and Use
The VBF Europe is the sole owner of the information collected on this site. We will not sell, share or rent this information to others in ways different from what is disclosed in this statement.

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This website may contain links to other sites. We are not responsible for the privacy practices of other sites. Read the privacy statements of each website that collects identifiable information. The VBF Europe does NOT pass on identifiable information in links.

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This website takes every precaution to protect users' information. When users submit sensitive information via the website, their information is protected both online and offline.

Sensitive Medical Information
The VBF Europe does, by its nature, sometimes become aware of sensitive medical information through the Ask the Doctor feature. This information is used internally and not sold, shared, or rented by the VBFE. Any photographs, drawings, descriptions, or other visual means of representation of medical conditions remain the property of the patient and will not be displayed on this web site without permission from the owners or guardians.

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The use of the Sturge-Weber Syndrome's discussion forum is voluntary. This forum is public and provided to the users as an informational and support tool. The VBF Europe cannot be held liable for any information, photographs, or personal information displayed there.

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The VBF Europe makes this site available for the sharing of information. All information contained herein is the sloe property of the VBF Europe, including, but not limited to, the information on the Discussion Forum. It may not be copied, distributed, or used in any print, online media, or any other media vehicle without our express permission.

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Chapters of the VBF

VBF
VBF Europe
VBF Spain
VBF Peru
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
VBF Vietnam
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks


Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS